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*** The Better Civilization

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What does it mean to work as though we live in the days of a better civilization? Although frequently attributed to Alasdair Gray (despite his disavowal), the line belongs to Gray’s contemporary, Canadian Dennis Lee.

In Civil Elegies, Lee writes:

And best of all is finding a place to be
in the early days of a better civilization
For we are a conquered nation: sea to sea we bartered
everything that counts, till we have
nothing to lose but our forebears’ will to lose.
But what good is that in a nation of
losers and quislings

Although Lee’s early work denounced Canada’s colonial complicity and earned him the Governor General’s award in 1972, he is better known for his children’s poetry. In fact, his poetry was a favorite of engineering professor Deb Chachra, who recently namechecked Lee in Metafoundry, her newsletter on the nexus of infrastructure, engineering, art, and individuals.

In Issue 73: Our Cyborg Collective Body, Ourselves, Chachra invokes the slow-burning apocalypse in William Gibson’s scifi novels (specifically, The Peripheral and Agency) to describe the current COVID crisis. She then cites Lee’s poetic injunction, calling on us to imagine a systemic, collective response.

What would it look like, after all, to build an infrastructure fit to serve a better civilization?

According to Paul Graham Raven, infrastructure is a “tool,” “an extension of baseline human abilities.” It’s a systematized technical augmentation–but with a biological input (us!).

In the context of COVID, we know our bodies have needs that manifest individually but must be met collectively: We become infectiously ill individuals, sometimes so ill we must be isolated from the collective to be cared for by the collective before returning to the collective. Needs like these are met (or not) through infrastructural responses, such as public health, also public education.

Yet, to build tools to meet the needs of a better civilization, we must not only identify needs that have not yet been met, but also determine those needs that have not yet been recognized as the collective’s responsibility.

In Sexuality for All Abilities, Katie Thune and I argue that there is an individual and a collective need for comprehensive sex education for young people in the special education classroom. While writing this book will not determine a better civilization, arguing for recognition of a collectively solvable problem may help hasten its arrival.

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Work As If You Live in the Early Days of a Better Civilization***

Way back in January of 2018, on my negligible commute, I tuned in to Minneapolis Public Radio for the local angle on NPR’s special series, “Abused and Betrayed.”

The conversation was guided by Marianne Combs and focused on the silent epidemic of sexual abuse among people with intellectual disabilities. Combs was joined by NPR correspondent and special-series investigator Joseph Shapiro, sexuality educator Katie Thune, and attorney Patrick Noaker to discuss the Minnesotan context of this national problem and respond to listeners’ phone calls.

The guests’ words were incredibly powerful, but my driveway moment was attributable to the anguish expressed by the parents and caregivers who called in to discuss the abuse sustained by their loved ones with disabilities.

Particularly memorable–and devastating–was the voice of an elderly woman who talked about the exploitation of her adult son. She recounted a situation that occurred years ago, when a powerful man in the community approached her young adult son with a sexual proposition. Her son has a traumatic brain injury: He lives independently, but he has limited cognition and social awareness and can be easy to confuse. The powerful man preyed on this vulnerability, framing his proposition as an arrangement that would help powerful man “relieve stress” and “do his job better.” Her son ultimately agreed, believing his actions were necessary and that he would be paid for them.

A few years later, the man died. When her son learned of the man’s death, he explained to his mom that he would be inheriting money, and why. She was of course shocked and furious, but what followed was even worse: When her son didn’t receive his money, he couldn’t understand why and accused his mother and siblings of stealing it.

The mom’s voice, broken in suffering, compelled me to reach out to Katie Thune to ask about turning her educational curriculum, Sexuality for All Abilities, into a book. The result of our efforts, I am proud to say, is Sexuality for All Abilities: Teaching and Discussing Sexual Health in Special Education, released this week by Routledge, as part of its Eye on Education series.

We created this book to give educators and others the tools and confidence required to teach topics in comprehensive sex education in the context of special education. In it, we draw on the expertise of educators, the experience of teachers, the stories of parents and caregivers, and the words of people with disabilities to inform lessons on healthy relationships, public and private spaces and behaviors, consent, hygiene, and other important topics necessary to living an informed life.

The book is a useful resource in and out of the classroom, but it’s also a contribution to the better civilization we strive to build—a civilization in which we acknowledge a wide range of individuals with varying abilities, and in which we seek to supply the education necessary to live as fully, safely, and with as much autonomy and pleasure as possible.

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